Publication Date



Open access

Degree Type


Degree Name

Doctor of Philosophy (PHD)


Psychology (Arts and Sciences)

Date of Defense


First Committee Member

Alexandra L. Quittner - Committee Chair

Second Committee Member

Annette M. La Greca - Committee Member

Third Committee Member

Frank J. Penedo - Committee Member

Fourth Committee Member

Kristin M. Lindahl - Committee Member

Fifth Committee Member

Michael J. Light - Outside Committee Member


This study documented the creation and initial validation of the Perceived Adolescent Social Support: Cystic Fibrosis (PASS-CF) inventory. The inventory was developed from semi-structured interviews of adolescents with cystic fibrosis (CF) and measured both supportive and non-supportive behaviors provided to adolescents by their family and friends. This study reports the findings from these interviews, results of the pilot testing of the measure, exploratory analyses of the utility of individual items, and the relationships between supportive and non-supportive behaviors and important clinical outcomes, such as treatment adherence, health-related quality of life (HRQoL), and other health outcomes. In particular, the study compared two measurement models suggested by popular definitions of social support. The "perceived support" model emphasized adolescents' cognitive appraisals of the support provided to them by family and friends, and the functional support model emphasized the utility of specific behaviors in managing CF. Results provided support for both models and provided insights into important next steps in the study of social support in adolescents with CF.


Cystic Fibrosis; Social Support; Adolescents; Measurement